I think it has been a few weeks since my last update,
which is a good thing because that means we haven’t had any unexpected news or
non-typical doctor visits. Ali is almost
2 months now and she is pure joy. She’s
getting chubby, interacting with us and wiggling all the time. She’s “talking” and cooing and smiling with
her eyes. I’m trying so hard to get that
first ‘social’ smile, but she’s not giving it up yet. Once I thought she was going to because she
made an expression I had never seen before.
I held her really close to my face trying to get that smile, but instead
she threw-up. All over my face. I swear
she did a little smile right after
that.
Bailey started 5th grade and has brought home all
sorts of germs. We have been so good at
hand washing, sanitizing and changing clothes out of fear of Ali getting
sick. Since she doesn’t have a spleen,
it will make fighting off infection much harder. Somebody is watching over her because
regardless of our efforts to live in a germ-free zone, everyone except for Ali
got sick this week. I took her to the
pediatrician yesterday just to get her lungs listened to and her O2 sats
checked and she is doing fine.
Hopefully this means that the combination of her daily dosage of Amoxicillin
and the antibodies she is receiving from nursing are keeping her well
protected.
Ali taking her meds:
!!!!!!!!!!!!!!! In the middle of writing this post Alessandra
gave her first smile! She wanted attention so I lifted her from the swing and cradled
her. She looked up at me and smiled. A
real smile! Her first smile. I’m so
happy this happened right now so that I can add this milestone (smilestone? I’m a dork) . I never want to forget it.
!!!!!!!!!!!!!!!!!!!!!!!!
As far as the rest of our life goes, things have been
fantastic. My family put together an
amazing baby shower for Alessandra. My
sister-in-law, Ann is a creative genius, especially in the kitchen. We had tea, white gloves, and food. It was so much fun.
My thoughts are all over the place this morning. Ali’s surgery will more than likely be in
October. Her O2 levels are in the
mid-to-low 80’s range and we can do better than that. I’m trying not to think about it too much
because its scary. My own heart aches at the thought of her going through this. I’ve known since 20 weeks gestation that she
would need surgery on her heart, but there is really no way to prepare for
this. I can’t imagine giving up my
seemingly healthy baby to surgeons, knowing that she will be so very sick and
miserable after. I can’t even think
about this. Ugh.
Thanks for reading,
~Melissa