This first week has been absolutely amazing. We are all enjoying Alessandra so much, she
is such a delightful baby <3 Like all
newborns her activities are limited to sleeping, feeding and pooping. Her cries are so feminine and she is easy to
console if she gets upset. Bailey is such a
proud big sister and jumps at the chance to be involved with everything, even
changing diapers. As for Mark, he is the
most attentive father in the world. I
can’t even express how much I love him.
He has been strong and confident when I have been crazy and
emotional. He has been involved in every
step of this journey and attends all doctor appointments with me. I am so fortunate to have him as my
husband.
Since being released from Phoenix Children’s Hospital we
have taken Alessandra to two different doctor’s appointments. On Tuesday she had her appointment with her
pediatrician so that she could receive her HEP B shot and her second newborn
screening test. Her pediatrician says
she is doing great, she has gained several ounces since birth weight which
means we have this breast feeding thing figured out.
The second appointment we had was with the cardiologist
earlier this afternoon. She endured the
EKG and echocardiogram like a little champ, she was even awake for most of
it. Our cardiologist confirmed that she
does not have any obstruction in her pulmonary veins, which is really really
really great. She has minor to medium stenosis
in her pulmonary arteries, but that is a good thing given her anatomy. If the arteries we not narrowed, that could
risk too much blood flow to the lungs.
For now,
it is looking like we are on track awaiting the Glenn procedure. We are not sure when this will be, but it
could be in the next few months. Our
goal now is to keep her in a “bubble” away from illnesses, help her to gain
weight and continue with daily antibiotics.
Here are some cute pictures that Mark took of our little
baby. I love being married to a
photographer:)
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